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Naša kazališna i televizijska glumica Marijana Mikulić otvoreno je govorila o razvojnim poteškoćama svojeg najmlađeg sina Jakova (3). On je velika mamina maza, smije se, igra, no još uvijek ne govori.

Nepoznate ljude rijetko gleda u oči, ne odaziva se na ime i ne razumije govor, ne zna prstom pokazati što hoće i ne pokazuje interes za druženjem s drugom djecom. Nakon godinu dana pretraga dijagnosticiran mu je nespecificirani poremećaj u razvoju govora i razumijevanja.

Marijana je trenutačno s njime na moru, a u emotivnoj ispovijesti u objavi na Instagramu objasnila je na koji ju je način svakodnevna borba za dobrobit sina promijenila i kao roditelja, piše Gloria.hr.

"Život me demantirao kroz mnogo područja, u majčinstvu posebno, mnogo puta, toliko toga sam popustila, pretjerala, suza isplakala, što od muke, što od nemoći, plivanja uzvodno, uporno, i kada sam na izmaku snaga.

Sada plivam samo kako Jaki dirigira. Ako mu je dobar dan družimo se, ako nije ili se sve otkazuje ili se dolazi unaprijed s isprikama da ćemo možda morati brzo otići. Nema na silu, nema sjedenja, ispijanja kava, jedno od nas stalno na nogama u niskom startu”, napisala je Mare.

Maleni trenutačno čeka logopedsku terapiju na koju je upućen nakon dijagnoze, no na nju mora čekati šest do devet mjeseci.

Pisala je i o podršci bližnjih i prijatelja koja ponekad više može odmoći nego pomoći. Zbog toga je zamolila i za više razumijevanja okoline budući da se radi o situaciji o kojoj ne znaš gotovo ništa dok se s njom ne susretneš.

"Na odmoru smo, kod svojih, idemo onda vidjeti prijatelje, kumove, ljude koje vidimo samo kad smo tu. Svi se trude, ali rijetki imaju razumijevanja, rijetki uopće žele razumjeti, većinom nas gledaju kao da nismo normalni - mi, dijete, ne znam... Valjda kada vidiš dijete bez noge ne trebaš puno razumijevanja - znaš da ne može trčati.

A kad vidiš veselog, zdravog, motorički spretnog trogodišnjaka, svi misle da mu roditelji nisu normalni jer misle da mali treba pomoć. A onda Jakov ima sat vremena plača u komadu ili bježi cijelo vrijeme iza ulaznih vrata jer želi pobjeći, pa moramo upaliti crtiće da ga se primiri, iako ekrane moramo izbjegavati...", opisala je Marijana njihovu svakodnevicu te dodala kako je sigurna da ljudi savjetima žele pomoći, no oni su ponekad suvišni. Dijagnoza je jasna, a Mare se, kaže, nada najboljem.

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Naša kazališna i televizijska glumica Marijana Mikulić otvoreno je govorila o razvojnim poteškoćama svojeg najmlađeg sina Jakova (3). On je velika mamina maza, smije se, igra, no još uvijek ne govori.

Nepoznate ljude rijetko gleda u oči, ne odaziva se na ime i ne razumije govor, ne zna prstom pokazati što hoće i ne pokazuje interes za druženjem s drugom djecom. Nakon godinu dana pretraga dijagnosticiran mu je nespecificirani poremećaj u razvoju govora i razumijevanja.

Marijana je trenutačno s njime na moru, a u emotivnoj ispovijesti u objavi na Instagramu objasnila je na koji ju je način svakodnevna borba za dobrobit sina promijenila i kao roditelja, piše Gloria.hr.

"Život me demantirao kroz mnogo područja, u majčinstvu posebno, mnogo puta, toliko toga sam popustila, pretjerala, suza isplakala, što od muke, što od nemoći, plivanja uzvodno, uporno, i kada sam na izmaku snaga.

Sada plivam samo kako Jaki dirigira. Ako mu je dobar dan družimo se, ako nije ili se sve otkazuje ili se dolazi unaprijed s isprikama da ćemo možda morati brzo otići. Nema na silu, nema sjedenja, ispijanja kava, jedno od nas stalno na nogama u niskom startu”, napisala je Mare.

Maleni trenutačno čeka logopedsku terapiju na koju je upućen nakon dijagnoze, no na nju mora čekati šest do devet mjeseci.

Pisala je i o podršci bližnjih i prijatelja koja ponekad više može odmoći nego pomoći. Zbog toga je zamolila i za više razumijevanja okoline budući da se radi o situaciji o kojoj ne znaš gotovo ništa dok se s njom ne susretneš.

"Na odmoru smo, kod svojih, idemo onda vidjeti prijatelje, kumove, ljude koje vidimo samo kad smo tu. Svi se trude, ali rijetki imaju razumijevanja, rijetki uopće žele razumjeti, većinom nas gledaju kao da nismo normalni - mi, dijete, ne znam... Valjda kada vidiš dijete bez noge ne trebaš puno razumijevanja - znaš da ne može trčati.

A kad vidiš veselog, zdravog, motorički spretnog trogodišnjaka, svi misle da mu roditelji nisu normalni jer misle da mali treba pomoć. A onda Jakov ima sat vremena plača u komadu ili bježi cijelo vrijeme iza ulaznih vrata jer želi pobjeći, pa moramo upaliti crtiće da ga se primiri, iako ekrane moramo izbjegavati...", opisala je Marijana njihovu svakodnevicu te dodala kako je sigurna da ljudi savjetima žele pomoći, no oni su ponekad suvišni. Dijagnoza je jasna, a Mare se, kaže, nada najboljem.

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Marijana Mikulić
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PanoramaMAMA LAVICA

Glumica Marijana Mikulić otvorila dušu na Instagramu: ‘Svi se trude, ali rijetki imaju razumijevanja, većinom nas gledaju kao da nismo normalni‘

Piše PSD
28. srpnja 2021. - 22:29

Naša kazališna i televizijska glumica Marijana Mikulić otvoreno je govorila o razvojnim poteškoćama svojeg najmlađeg sina Jakova (3). On je velika mamina maza, smije se, igra, no još uvijek ne govori.

Nepoznate ljude rijetko gleda u oči, ne odaziva se na ime i ne razumije govor, ne zna prstom pokazati što hoće i ne pokazuje interes za druženjem s drugom djecom. Nakon godinu dana pretraga dijagnosticiran mu je nespecificirani poremećaj u razvoju govora i razumijevanja.

Marijana je trenutačno s njime na moru, a u emotivnoj ispovijesti u objavi na Instagramu objasnila je na koji ju je način svakodnevna borba za dobrobit sina promijenila i kao roditelja, piše Gloria.hr.

"Život me demantirao kroz mnogo područja, u majčinstvu posebno, mnogo puta, toliko toga sam popustila, pretjer...

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15. svibanj 2024 20:32